Presenter: Sarah Doak

Title: “Identifying And Defining Health Dimensions for an Inflammatory Bowel Disease-Specific Patient-Reported Experience Measure”

As the incidence and prevalence of inflammatory bowel disease (IBD) rises in Canada, it is important to consider the quality of care that patients are receiving from their health-care providers. One tool that a researcher can use to measure a patient’s satisfaction with their care is a Patient-Reported Experience Measure (PREM), a standardized questionnaire used to measure a patient’s perception of the quality of medical care they have received. While several PREMs are currently used in IBD patient care, few have been validated for use specifically with IBD patients, and most do not use a qualitative approach, i.e. include the patient’s perceived definition of what constitutes high-quality care. The present study therefore focused on qualitatively capturing the experiences of patients with inflammatory bowel disease on their journey through the health-care system in Prince Edward Island. The data presented in this study are based on information collected during one-on-one interviews with five patients that were receiving ambulatory, IBD-related care in Queens County, PEI, between September to December 2022. Thematic analysis of interview transcripts revealed four general themes: (1) Needing to Plan; (2) Managing Complications; (3) Patient-Provider Communication, and (4) Patient Ability to Access IBD-related Healthcare. Overall, participants felt satisfied with their treatment plans and the quality of care that they received from their health-care providers. This was largely influenced by the ease with which they could access specialized IBD care and the strong communication between themselves and their health-care providers.

Date/Time/Location: April 2, 2025, 1:00 pm, Health Sciences Building 226

Everyone is welcome,